We don't have pictures, but . . .

Hey all,

We don't have pictures, but you should have seen her tonight. We haven't told anybody, but she loves Boca Burgers -- mostly because she loves mustard. She won't eat ketchup, but she gobbles down the mustard -- literally -- handfuls. It is pretty fun! Her cheeks get all pink then she asks for her drink with a really worried look on her face, like she is saying, "if I don't drink something now, my tongue is going to burn off!"

Tonight, after her mustard - ah - Boca Burger, she chowed-down on some sweet potato. We video recorded this. Daddy asked her if she wanted some "POE - TAY - TOE" to which she replied, softly, "bow-boo-boe" hee hee hee :) She repeated it later when Mommy asked her.

As you all know, she is a joy, but we have to be honest that we are also really worried right now. We reduced the phenobarbital a while ago, and things seemed to be going well. Last week, on four different occasions, we saw Tahlia have some type of weird activity. We're not sure if it wasn't just her being a little baby, but our friend, who is a dr. told us to call the neurologist. They all happened around the same time of day, and they all affected her left side. We put the call in and the neurologist isn't concerned, and we trust him . . . but we also feel a need to be vigilant on this. Any positive thoughts or prayers that you can send her way would be really welcome now.

She is also walking a bunch, but is having difficulty with her left leg. She hyper-extends it with every step. This makes her very unstable. Her PT said that that is typical in kids who have had a stroke because they can "feel" it when it is hyper-extended. We have noticed that once most kids start walking, it is all they want to do, and they progress rapidly. Tahlia has been "walking" now for three months, but still chooses to crawl often. We think she feels it is safer. Mommy and Daddy are working daily on helping her to build up the muscle in her quadriceps of her left leg as instructed by Tahlia's PT. So, send good thoughts and prayers for that too.

Love to you all, and thank you for your continued help.

Muggsie, Lauren and Tahlia